Helping Our Cancer Kids
I am sorry I have not published a Rare Cancer Forums newletter in quite some time. I have been swamped with work for the website and software modifications that have had to be made because of hacker possibilities and security defenses. Sometimes, just keeping up with this is a full time job. Let alone, all the work of keeping the website maintained, answering cancer patients on the internet and phone, etc..
I realize that many of you do not have the time or inclination to volunteer to help. I have learned to accept that. Many of us on the forums are adults, but we have some parents with children also. These kids won my heart and soul years ago and motivated me to become a cancer advocate. When I was going through my own cancer surgeries, I was also helping a young child with brain cancer that a family member of mine had referred to me. The ‘kids’ have been there with me from the beginning.
That is why I am sending out this plea to you for help. Volunteer whatever you can give in time, or ask a family member or friend if they would like to help. I have been unable to spend any time working on the KidsPlea website:
Kidsplea.Org
I need an army of volunteers to help me look up pending legislation that may effect our cancer kids. I believe that if we start pushing for legislation, as a group, we just might be able to keep the kids from going through what we have all been through. If you (or someone you know) can give me a half or hour of your time, each week, please contact me. I can teach you how to do this, regardless of your computer expertise level. I will walk anyone through it, if they are going to stick it out on the job for a while. Please, I cannot spend my time training if you are not going to follow through with your intentions. I have done far too much of this for the ‘volunteers’ who have not stuck it out with me. I need volunteers that can commit to this project.
Thanks for reading this. Please pass it on to anyone you know who might want to get involved. They can use the contact form on the website to contact me:
Contact Form
I hope you are all doing well. Our membership is growing but very little posting on the forums is being done. I am not the expert on your cancer - you are. And as a ‘group’ you are very expert in your cancer areas. You just need to start sharing information with each other to find this out. Use the forums, it will help us all.
Take Care, Sharon
http://www.rare-cancer.org