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	<title>Rare Adult &#038; Pediatric Cancer Web Blog</title>
	<link>http://blog.rare-cancer.org</link>
	<description>Web Blog For Cancer Patients &#038; Caregivers</description>
	<pubDate>Sat, 09 Feb 2008 02:58:08 +0000</pubDate>
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	<language>en</language>
			<item>
		<title>Need Help</title>
		<link>http://blog.rare-cancer.org/need-volunteers-30</link>
		<comments>http://blog.rare-cancer.org/need-volunteers-30#comments</comments>
		<pubDate>Thu, 03 Jan 2008 01:22:58 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>Support</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/need-help-30</guid>
		<description><![CDATA[I hope that you are all having a wonderful Holiday Season, filled with love and joy.  Take a moment to reflect on all that you have been through this year, the good and bad; and all of your hopes for 2008.
I am heading into 2008 with a low level of energy and motivation.  This is [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/need-volunteers-30/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Neuroendocrine &#038; Carcinoid Tumors - Octreotide Levels</title>
		<link>http://blog.rare-cancer.org/neuroendocrine-carcinoid-tumors-octreotide-levels-29</link>
		<comments>http://blog.rare-cancer.org/neuroendocrine-carcinoid-tumors-octreotide-levels-29#comments</comments>
		<pubDate>Fri, 02 Mar 2007 14:30:38 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>Rare Cancers</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/neuroendocrine-carcinoid-tumors-octreotide-levels-29</guid>
		<description><![CDATA[Octreotide treatment in patients with neuroendocrine  and carcinoid tumors need to be monitored.]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/neuroendocrine-carcinoid-tumors-octreotide-levels-29/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Intra-arterial Chemotherapy</title>
		<link>http://blog.rare-cancer.org/intra-arterial-chemotherapy-28</link>
		<comments>http://blog.rare-cancer.org/intra-arterial-chemotherapy-28#comments</comments>
		<pubDate>Fri, 12 Jan 2007 03:53:36 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>General</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/intra-arterial-chemotherapy-28</guid>
		<description><![CDATA[This procedure allows for direct infusion of chemotherapy agents into an artery.  This enables the doctors to more precisely pinpoint the area to be treated, deliver higher doses and concentrations of the drugs, and decrease exposure to the rest of the organs of the body.  This is a definite advantage in many circumstances; such as brain [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/intra-arterial-chemotherapy-28/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Intraperitoneal Hyperthermic Chemotherapy (IPHC)</title>
		<link>http://blog.rare-cancer.org/intraperitoneal-hyperthermic-chemotherapy-iphc-27</link>
		<comments>http://blog.rare-cancer.org/intraperitoneal-hyperthermic-chemotherapy-iphc-27#comments</comments>
		<pubDate>Fri, 08 Dec 2006 20:55:35 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>Rare Cancers</category>

		<category>General</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/intraperitoneal-hyperthermic-chemotherapy-iphc-27</guid>
		<description><![CDATA[Intraperitoneal hyperthermic chemotherapy is being used, sometimes in conjunction with cytoreductive surgery, for selected peritoneal malignancies. Here is an excellent video presentation of intraperitoneal hyperthermic chemotherapy:
Wake Forest Video Presentation
You must have Real Player installed on your computer to view this video.  For a free download of Real Player, click here.
Types of cancer/conditions treated may include:

Appendiceal Neoplasms with [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/intraperitoneal-hyperthermic-chemotherapy-iphc-27/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Gamma Knife Stereotactic Radiosurgery</title>
		<link>http://blog.rare-cancer.org/gamma-knife-stereotactic-radiosurgery-26</link>
		<comments>http://blog.rare-cancer.org/gamma-knife-stereotactic-radiosurgery-26#comments</comments>
		<pubDate>Fri, 08 Dec 2006 18:25:48 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>General</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/gamma-knife-stereotactic-radiosurgery-26</guid>
		<description><![CDATA[I found an excellent resource on the web for those of you who are considering gamma knife stereotactic radio surgery.  It is a comprehensive video website presentation of an actual procedure; including the entire planning process.  Make sure that you have Real Player installed on your computer.  For a free download of Real Player, click [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/gamma-knife-stereotactic-radiosurgery-26/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Long Term Follow Up?</title>
		<link>http://blog.rare-cancer.org/long-term-follow-up-25</link>
		<comments>http://blog.rare-cancer.org/long-term-follow-up-25#comments</comments>
		<pubDate>Thu, 07 Dec 2006 01:27:43 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>Rare Cancers</category>

		<category>Child Cancers</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/long-term-follow-up-25</guid>
		<description><![CDATA[I was reading an abstract from Endocrinologist today, written by physicians from MD Anderson, about the importance of long term follow up in differentiated thyroid cancers (a rare form of thyroid cancer).  The abstract discussed several cases that had recurrence after 10 years of NED (no evidence of disease).
It said &#8220;Factors known to influence risk of recurrence (age [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/long-term-follow-up-25/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Farrah Fawcett&#8217;s Battle With Anal Cancer</title>
		<link>http://blog.rare-cancer.org/farrah-fawcetts-battle-with-anal-cancer-24</link>
		<comments>http://blog.rare-cancer.org/farrah-fawcetts-battle-with-anal-cancer-24#comments</comments>
		<pubDate>Wed, 06 Dec 2006 05:36:25 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>Support</category>

		<category>Rare Cancers</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/farrah-fawcetts-battle-with-anal-cancer-24</guid>
		<description><![CDATA[Today&#8217;s news articles are discussing her completion of treatments (radiotherapy and chemotherapy).  The thing that is bothering me about most of the articles is their desire to make this sound like it was a &#8216;cake walk&#8217; for her. After listening to members of our Anal Cancer Group, I have to tell you that I don&#8217;t think [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/farrah-fawcetts-battle-with-anal-cancer-24/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Uterine Leiomyosarcoma Champion</title>
		<link>http://blog.rare-cancer.org/uterine-leiomyosarcoma-champion-23</link>
		<comments>http://blog.rare-cancer.org/uterine-leiomyosarcoma-champion-23#comments</comments>
		<pubDate>Fri, 01 Dec 2006 04:48:06 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>Rare Cancers</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/uterine-leiomyosarcoma-champion-23</guid>
		<description><![CDATA[Dr. Matthew Anderson, Baylor College of Medicine in Houston, TX should be considered our knight in shining armor, ladies.  He and Dr. Diane Bodurka, from the M.D. Anderson Cancer Center, created a database of information for 400 patients diagnosed with this rare form of uterine cancer.  Compiling the patient information took Dr. Anderson over 5 years.  Data, such as [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/uterine-leiomyosarcoma-champion-23/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Ewing&#8217;s Sarcoma in Adults</title>
		<link>http://blog.rare-cancer.org/ewings-sarcomas-in-adults-22</link>
		<comments>http://blog.rare-cancer.org/ewings-sarcomas-in-adults-22#comments</comments>
		<pubDate>Wed, 29 Nov 2006 18:06:50 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>Rare Cancers</category>

		<category>Child Cancers</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/ewings-sarcomas-in-adults-22</guid>
		<description><![CDATA[Ewing’s sarcoma, peripheral primitive neuroectodermal tumor (PPNET), and Askin’s tumor are classified as Ewing’s tumors.  It is most often found in children, adolescents, and young adults.
Chromosomal translocation and fusion between chromosomes is the basic cause of this cancer. These tumors can occur anywhere in the body, but most commonly present in the pelvis, proximal long tubular bones (such as [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/ewings-sarcomas-in-adults-22/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Losing A Loved One</title>
		<link>http://blog.rare-cancer.org/losing-a-loved-one-21</link>
		<comments>http://blog.rare-cancer.org/losing-a-loved-one-21#comments</comments>
		<pubDate>Fri, 10 Nov 2006 02:43:12 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>General</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/losing-a-loved-one-21</guid>
		<description><![CDATA[&#8220;Acceptance is the answer to all my problems.&#8221; My close friends said that to me when my husband died. He did not die from cancer (I am the cancer patient), but he did die from long term medical problems. Many of my friends said &#8220;you knew it was coming&#8221;. And they told me that I [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/losing-a-loved-one-21/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Rare Cancer Symbol</title>
		<link>http://blog.rare-cancer.org/rare-cancers-symbol-20</link>
		<comments>http://blog.rare-cancer.org/rare-cancers-symbol-20#comments</comments>
		<pubDate>Mon, 30 Oct 2006 18:10:56 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>Support</category>

		<category>Rare Cancers</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/rare-cancers-symbol-20</guid>
		<description><![CDATA[I am working on a rare cancer symbol and &#8216;ribbon&#8217;.  I will have that work done this week and (hopefully) will be drafting up some bumper stickers, window clings, decals, pins, and pendants for rare cancer survivors.
At the same time, I will be writing up the story behind this symbol and why I chose to [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/rare-cancers-symbol-20/feed/</wfw:commentRss>
		</item>
		<item>
		<title>PLWC Bulletin 8/06</title>
		<link>http://blog.rare-cancer.org/plwc-bulletin-august-2006-19</link>
		<comments>http://blog.rare-cancer.org/plwc-bulletin-august-2006-19#comments</comments>
		<pubDate>Thu, 24 Aug 2006 16:10:50 +0000</pubDate>
		<dc:creator>Stan</dc:creator>
		
		<category>General</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/plwc-bulletin-august-2006-19</guid>
		<description><![CDATA[From ASCO -
http://tinyurl.com/n5o3k





]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/plwc-bulletin-august-2006-19/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Benefits Of OnLine Support</title>
		<link>http://blog.rare-cancer.org/the-benefits-of-on-line-support-18</link>
		<comments>http://blog.rare-cancer.org/the-benefits-of-on-line-support-18#comments</comments>
		<pubDate>Thu, 10 Aug 2006 16:36:12 +0000</pubDate>
		<dc:creator>Stan</dc:creator>
		
		<category>Support</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/the-benefits-of-on-line-support-18</guid>
		<description><![CDATA[The Benefits of Online Support
Kevin Wright, Ph.D., a researcher at the University of Memphis, has studied online groups that deal with cancer. Wright, whose mother&#8217;s death of breast cancer several years ago sparked his interest in online support for cancer patients, has found numerous benefits in online support. “Online communication allows people to interact with [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/the-benefits-of-on-line-support-18/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Helping Others</title>
		<link>http://blog.rare-cancer.org/helping-others-17</link>
		<comments>http://blog.rare-cancer.org/helping-others-17#comments</comments>
		<pubDate>Mon, 07 Aug 2006 19:47:44 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>Support</category>

		<category>General</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/helping-others-17</guid>
		<description><![CDATA[I am always so surprised at rare cancer patients when they believe that they have no information that would help another person with their cancer.  That is so wrong!
Your own personal experiences can help others with your cancer.  Online support groups allow us all to share our personal diagnosis and treatment experiences.  If we do [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/helping-others-17/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Adult Sarcoma</title>
		<link>http://blog.rare-cancer.org/adult-sarcoma-16</link>
		<comments>http://blog.rare-cancer.org/adult-sarcoma-16#comments</comments>
		<pubDate>Sat, 05 Aug 2006 20:39:01 +0000</pubDate>
		<dc:creator>Stan</dc:creator>
		
		<category>Rare Cancers</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/adult-sarcoma-16</guid>
		<description><![CDATA[Adult Soft Tissue/Bone Sarcoma -  

Soft tissue/bone sarcomas are malignant tumors that may arise in any of the connective tissues (muscles, tendons, vessels that carry blood or lymph, joints, bones, nerves and fat). The peak age incidence is around 50 years. Sarcomas are a diverse range of tumors, they are named after the type of soft [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/adult-sarcoma-16/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Getting On With Living</title>
		<link>http://blog.rare-cancer.org/getting-on-with-living-12</link>
		<comments>http://blog.rare-cancer.org/getting-on-with-living-12#comments</comments>
		<pubDate>Sat, 29 Jul 2006 06:23:18 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>General</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/getting-on-with-living-12</guid>
		<description><![CDATA[In 1998, I was diagnosed with a cancer - adenoid cystic carcinoma - that is slow growing (even indolent) at times, but can be aggressive or even turn that way after some time.  It has a propensity to metastasize to the lungs, primarily; but can also go to the liver, bones, and brain.
 Some people who [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/getting-on-with-living-12/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Helping Our Cancer Kids</title>
		<link>http://blog.rare-cancer.org/helping-our-cancer-kids-11</link>
		<comments>http://blog.rare-cancer.org/helping-our-cancer-kids-11#comments</comments>
		<pubDate>Sun, 23 Apr 2006 17:39:06 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>Child Cancers</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/helping-our-cancer-kids-11</guid>
		<description><![CDATA[I am sorry I have not published a Rare Cancer Forums newletter in quite some time.  I have been swamped with work for the website and software modifications that have had to be made because of hacker possibilities and security defenses.  Sometimes, just keeping up with this is a full time job.  Let alone, all [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/helping-our-cancer-kids-11/feed/</wfw:commentRss>
		</item>
		<item>
		<title>University &#038; Medical Libraries</title>
		<link>http://blog.rare-cancer.org/university-medical-libraries-10</link>
		<comments>http://blog.rare-cancer.org/university-medical-libraries-10#comments</comments>
		<pubDate>Tue, 21 Mar 2006 05:03:08 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>General</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/university-medical-libraries-10</guid>
		<description><![CDATA[I spent several hours doing updated research on adenoid cystic carcinoma - breast and head &#038; neck, cancers of the appendix, carcinoid, phyllodes, pseudomyxoma peritonei (pmp), and several other rare cancers.  On some, there was not much new since my last update.  But, others had some very interesting journal articles. 
If you new (or relatively new) to the [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/university-medical-libraries-10/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Pathology - Hematology Report</title>
		<link>http://blog.rare-cancer.org/pathology-hematology-report-9</link>
		<comments>http://blog.rare-cancer.org/pathology-hematology-report-9#comments</comments>
		<pubDate>Sun, 19 Mar 2006 06:17:27 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>General</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/pathology-hematology-report-9</guid>
		<description><![CDATA[Since 1998 I have been helping rare cancer patients find information for their cancers.  It has always astounded me that the larger percentage of these people do not have a copy of their original pathology, hematology, or surgical report. 
This report is invaluable when it comes to doing research for rare tumors or cancers.  It gives you the [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/pathology-hematology-report-9/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Cancer Notebook</title>
		<link>http://blog.rare-cancer.org/cancer-notebook-8</link>
		<comments>http://blog.rare-cancer.org/cancer-notebook-8#comments</comments>
		<pubDate>Mon, 13 Mar 2006 15:37:14 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>General</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/cancer-notebook-8</guid>
		<description><![CDATA[When someone is diagnosed with cancer, they are profoundly and immediately changed.  &#8216;Overwhelming&#8217; is a gross understatement.  Then there is all the new &#8217;stuff&#8217; you have to do - doctors, labs, surgeries, treatments.  I am going to add one more, very important, thing to your &#8216;to do&#8217; list.  Start a Cancer Notebook.
 I learned, very early [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/cancer-notebook-8/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Volunteer Frustration</title>
		<link>http://blog.rare-cancer.org/volunteer-frustration-7</link>
		<comments>http://blog.rare-cancer.org/volunteer-frustration-7#comments</comments>
		<pubDate>Mon, 06 Mar 2006 17:22:39 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>Support</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/volunteer-frustration-7</guid>
		<description><![CDATA[I am going to do a little ranting today.  As anyone who knows me well, I have spend the majority of my days, since 1998, working on websites for rare cancer patients and giving them support and information.  I work extremely long days doing this and have not had a weekend off in years.
 Throughout those [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/volunteer-frustration-7/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Child Clinical Trial Consent</title>
		<link>http://blog.rare-cancer.org/child-clinical-trial-consent-5</link>
		<comments>http://blog.rare-cancer.org/child-clinical-trial-consent-5#comments</comments>
		<pubDate>Mon, 16 Jan 2006 06:04:38 +0000</pubDate>
		<dc:creator>admin</dc:creator>
		
		<category>Child Cancers</category>

		<guid isPermaLink="false">http://blog.rare-cancer.org/assent-5</guid>
		<description><![CDATA[When your child has cancer, you would do anything to cure their disease. Often, parents will choose to enroll their children in a clinical trial. When this happens, the parent may need to consider the amount of trial information that whould be shared with their child. Although, many treatment facilities use a standardized &#8216;assent&#8217; document that discloses trial [...]]]></description>
		<wfw:commentRss>http://blog.rare-cancer.org/child-clinical-trial-consent-5/feed/</wfw:commentRss>
		</item>
	</channel>
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